So here I am telling the world that Autism is a neurological disorder and cannot be cured….right?right? Yep that’s me….
So then why do I constantly get my kids rediagnosed? Why is this even an issue? Shouldn’t one diagnosis be enough? I mean you don’t see parents of down syndrome kids going in for another genetic screening and coming back out and saying “yep, just like we thought…Down Syndrome”, so then why do parents of autistic children go through this every 2-3 years?
It is because our kids look just like everyone else. You know how on the show and movie V (yep the alien show) they where “skin” so you can’t tell them apart from humans. Well, we auties feel like we wear a skin that helps us blend in. There are no physical deformities; therefore, it takes awhile to see our issues. Typically you see a bratty kid that needs a whoopin, when in fact a piece of clothing touched my sons arm and it felt like knives.
Therefore, to make all of the school officials happy these kids have to undergo a new diagnosis every 3 years. It’s ridiculous and just because you can fake social skills and blend in doesn’t mean on the inside you aren’t full of chaos. This is the goal for the rest of my life to teach educators and those surrounding autism about the fact that looks are deceiving and to constantly tell us “he looks so normal” is a slap in the face.
I think I get tired of repeating his symptoms over and over…it becomes monotonous. There are times that I don’t even remember all of his symptoms. I mean we live this every single day. This is not like talking about a child in your class, this is talking about your own child. This is his life, their life, not mine. It’s extremely difficult to relate symptoms that are just an integral part of your life. Some of the details that I gave yesterday includes:
#1: Constant spinning and twirling
#2: Talks as if 5 yrs old not 9
#3: Echolalia is present everyday (Can repeat movies word for word…repeats to himself anything that he hears passing by)
#4: Has no danger awareness
#5: I still have to complete all of his grooming including wiping his bottom
#6: Lacks eye contact
#7: Loves to make anything symmetrical
#8: obsessed with Legos
#9: Fabulous with math
And there were a few others, but these are just for starters………..there are so many things i forget to mention….what are some of the things you forget to mention when you go to the therapist or the doctor? Have you ever been told something you considered normal actually wasn’t?
Remember to live without reservations for your children!